Passing of Jo Dickey

Inclusion Canada is deeply saddened to share the passing of Jo Dickey.
Jo was one of the pioneering mothers whose advocacy helped shape the community living movement in Canada. Alongside other families, she worked tirelessly toward a more inclusive world for her son, and in doing so helped advance greater rights, opportunities, and belonging for countless individuals and families.
Jo was also among the first leaders to directly challenge institutions. She was a founder of the Woodlands Parents Group, whose advocacy led to the closure of the Woodlands institution, allowing her son Drew — and many others — to return to community life. This work helped demonstrate that institutionalization was neither necessary nor acceptable, and that people belonged in their communities.
Jo’s leadership extended nationally. She served as President of the Canadian Association for Community Living (CACL) from 1977 to 1980, the organization now known as Inclusion Canada. During this formative period, she was instrumental in refocusing the association toward the voices and needs of families — parents and individuals — at a time when the movement had been largely dominated by professionals.
Her tireless efforts were also chronicled in Melanie Panitch’s book Mothers, Disability and Organization: Accidental Activists, which captures the power and impact of family-led advocacy in advancing inclusion.
Because of Jo’s vision, leadership, and perseverance, many came to see that a better way — grounded in dignity, community, and belonging — was possible.
Our heartfelt condolences are with Jo’s family, friends, and all of us who were inspired by her life and work.
Read Jo’s obituary:
https://legacy.com/ca/obituaries/nsnews/name/lila-dickey-obituary?id=60534085
Read more about Jo in a tribute to her by the foundation set up in her name: The Jo Dickey Foundation:
